National Cohen Syndrome Support Group

Cohen Syndrome is a rare genetic disorder caused by a recessive gene. There are approximately 135 known cases worldwide. DDC Clinic works with 30 Cohen individuals.

Children with Cohen syndrome generally have learning disabilities and cognitive delays. They have a typical facial appearance and usually experience eye problems, such as short-sightedness (myopia) and degeneration of the retina.

Children with Cohen syndrome tend to be very sociable. They are loving and take a lively interest in the world around them.

Our first National Cohen Syndrome support weekend was held June 18 and 19, 2004. Click here to read our Cohen Syndrome newsletter.

For more information, please contact us at 440-632-1668 or click here to send us an email.