| |
"As a parent, the saddest and scariest moment in my life was
learning my child was ‘special'...
the polite term for disabled."
You too may have received similar news. Your child may have a
diagnosis, but there is no known treatment. Or, the multitude of
doctors you have seen have no idea
 what is wrong. Many families accept
this and 'go home'.
The DDC Clinic families, however, have decided to take the next step.
Our goal is to change the future for our children. If we can add to
researchers' current knowledge of some orphan diseases, if we can
speed up the scientific research process, if we can improve the
quality of life for our children today, we will be successful. And, we
will also bring attention to the many children with rare disorders who
have been left behind.
Our road is very long...but we have begun. Come join us.
Other topics for parents located in the Parents Corner section of our
web site are:
For more information, please contact us at 440-632-1668 or
click here to send us an email.
|
