Fundraisers - DDC Clinic sponsored benefit events


Patchwork Benefit & Auction

TBD 

For more information call 440-632-1668.

Amish Benefit Auction

Friday, October 1, 2010

 

 

 

 

 

 

 

 

 

-- Amish Auction to benefit DDC Clinic for Special Needs Children --

Fall is fast approaching and it’s that time of the year for the 10th Annual Amish Auction.

This family fun event is like no other auction ~

  • Admission is free
  • Parking is free
  • Children of all ages are welcome
  • Dress is casual
  • The pace is fun and fast
  • The food is fabulous
  • The blend of communities is joyful

Come on out and get an early start on your holiday shopping. This unique auction will include Amish-made furniture, quilts, crafts, tools and more.  A variety of great homemade food and baked goods will also be available.

And, there is even Cow Patty Bingo. The winner receives a ½ side of cut beef, wrapped and freezer ready!

Friday, October 1, 2010
Beginning at 4:00 pm
Middlefield Market Pavilion
15848 Nauvoo Road, Middlefield Ohio 44062

For more information call 440-632-1668

Support Groups - DDC Clinic sponsored family events

Post event update
 

Ganglioside GM3 synthase deficiency family meeting

The GM3 Family Meeting was a great day of sharing. Dr. Wang began speaking about new information he has learned about this devastating disorder. Dr. Kevin Strauss, from the Clinic for Special Children in Lancaster also spoke with attendees. Dr. Cui from Wake Forest University also attended. The event was attended by approximately 60 parents and 10 children with GM3 synthase deficiency. It was agreed by all attending that the event should be held each year to help families communicate with each other. We look forward to another event in the spring of 2010.
Post event update



National Cohen Syndrome support weekend



 

This event was held on Friday June 20th and Saturday June 21st at Metzenbaum Center on Cedar Rd. in Chesterland, Oh. Friday begin with introductions and some social time and then Dr. Wang spoke to the group about what has been accomplished in the last two years since the group met. Dr. Jim Lalumandier from Case Western School of Dentistry also addressed the group of 50 parents. In the afternoon, Dr. Lalumandier had his dental students do exams on the children in attendance. Saturday was a day of all participants getting acquainted and sharing information and good food. Bone density tests were done on parents, siblings and children with Cohen disease. Some parents got together to begin exploring the idea of a parent advisory group to assist other families all over the world to learn more about Cohen Syndrome. DDC Clinic will be a willing participant in their advisory group.

Invited Lectures - DDC Clinic staff
Most lectures are not open to the general public - if you are a medical professional
and would like more information on these lectures please call the contact below.

Location & Date Event & Title Contact
Rainbow Babies & Children's Hospital, Cleveland  


February 11, 2008
 

Pediatric Hematology / Oncology Fellow's Conference

Title: From Amish culture and rare genetic diseases to hematology - what we all can learn
 
Alex Y. Huang, MD, PhD
Assistant Professor, Division of Pediatric Hematology / Oncology
Rainbow Babies & Children's Hospital

Phone: (216) 368-1271
e-mail: alex.huang@uhhospitals.org
Department of Chemistry, Cleveland State University

April 1, 2008
 

Special Topics in Clinical Chemistry, A Seminar for Graduate Students of Cleveland State University

Title: Molecular Diagnosis of Genetic Diseases
 
Aimin Zhou, Ph.D.
Associate Professor
Clinical Chemistry Program
Department of Chemistry, SI 424
Cleveland State University
Cleveland, OH 44115

Phone: 216-687-2416
e-mail: a.zhou@csuohio.edu

For more information regarding these events, please contact us at 440-632-1668 or click here to send us an email.

 

 

DDC Clinic for Special Needs Children

440-632-1668
14567 Madison Road
Middlefield, OH, 44062

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