Our mission is to enhance the quality of life for people with special needs caused by rare genetic disorders.
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Board of Directors
| Tom Stone, PhD, President | |
| Eli Miller, Vice President | |
| Chester Detweiler, Secretary | |
| Joe Vitale, Treasurer | |
| JR Bockoven, MD | Chuck Fowler |
| Leroy Coblentz | Raymond J. Miller |
| Merrie Darrah | Robert Yoder |
| Don Daut | Frann R. Zverina |
| Patra Duangjak, MD | |
Directors Emeriti
Gordon Safran |
Joseph L. Weaver |
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Advisory Council
Scott Brace |
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James Bryant, M. D. |
Linton Sharpnack |
Betsy Juliano |
Susan Turben, PhD |
Holmes Morton, MD |
Kurt Wegner, M. D. |
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